Prof Annapurna Poduri - Genetic Epilepsy Team Australia

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1 day ago

The Genetic Undiagnosed And Rare Disease (GUARD) collaborative recently conducted a COVID-19 Survey. Did you know that 87% of respondents have been impacted by COVID-19 and 59% believe they are at increased risk of COVID-19?

Click the link to read our other findings.

swanaus.org.au/wp-content/uploads/2020/07/COVID-19-survey-Results.pdf

Syndromes Without A Name - SWAN Australia GA Aus Genetic Support Network of Victoria (GSNV) Genetic and Rare Disease Network ...

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Genetic Epilepsy Team Australia - GETA

2 days ago

For those who are running patient groups/organisations and would like to understand a more about the PBAC and patient based evidence. ...

Patient Based Evidence: Using patient preference research for PBAC/MSAC

www.eventbrite.com.au

Webinars for patient groups and communities wanting to know about patient preference research for reimbursement decisions in Australia

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