Program: Genetic Epilepsy Family Conference 2024

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Date Time Speaker Title
Saturday April 13 AEST (UTC+10)
10:30am – 11:00am Registration and morning tea
11:00am – 11:15am Sara James Welcome and Introduction
11:15am – 12:15pm Prof Phillip Pearl Autism and the Neurology of Creativity
12:15pm – 12:30pm Prof Temple Grandin, Jacqui Butcher, Will Pierce The Power of Animals in Neurodiversity
12:30pm – 1:00pm Prof Steven Petrou Antisense Oligonucleotide in SCN2A – Clinical Trial Results
1:00pm – 1:30pm Lunch
1:30pm – 2:15pm Prof Ingrid Scheffer Developmental and Epileptic Encephalopathies: New Insights and Therapeutic Advances
2:15pm – 2:20pm Sarah Webster Raising a Child with a DEE in the Australian Outback
2:20pm – 3:05pm Dr Katherine Howell The Impact of Developmental Epileptic Encephalopathies
3:05pm – 3:30pm Afternoon Tea
3:30pm – 4:00pm Dr Sal Rico Unlocking Potential: The Road to Gene Therapies for Genetic Epilepsies
4:00pm – 4:15pm Ursula Reyes The Path to Obtaining Access to an Early Access Program in Australia
4:15pm – 4:55pm Panel – Dr Sal Rico, Ursula Reyes, Prof Ingrid Scheffer, Dr Katherine Howell, Prof Phillip Pearl Panel
4:55pm – 5:00pm Sarah James Summary and Close
6:00pm – 8:00pm Dinner – Graduate House
Sunday April 14 AEST (UTC+10)
08:45am – 9:15am Arrive and Breakfast
9:15am – 9:20am Sarah James Welcome and Introduction
9:20am – 10:05am Dr Annie Chiu Sleep Problems in Children and Adolescents With Developmental Epileptic Encephalopathies
10:05am – 10:50am Professor Angela Morgan Speech and Language Phenotyping to Guide Targeted Therapies in Rare Disease
10:50am – 11:15am Morning Tea
11.15am- 12:15pm Brialie Forster, Lisa Rath, Bernadette Zappa, Caroline Kiefer, Kris Pierce Epilepsy Supports: What is Available and How to Access Them
12:15pm – 12:30pm Sarah James Summary and Close

 

Thanks to our sponsors: 

GETA:  GET A Team, GET A Target, GET A Cure

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