Conference 2019

Genetic Epilepsy Team Australia’s 2019 Genetic Epilepsy Conference

The 2019 meeting on Saturday May 4th was a great success with over 100 attendees in person and hundreds more around the world going via live-stream.  It was a great opportunity for families, researchers and clinicians to come together to hear the latest research in to genetic epilepsy and discuss plans for developing treatments for these debilitating conditions.

If you couldn’t make the conference, watch the videos of all speakers on our resource page, or go to videos of individual lectures by clicking the speaker’s name in the program below.

Thanks to our wonderful speakers and to everyone who participated in the conference. We look forward to working together with you to help find a cure for genetic epilepsies.

GETA 2019 Attendees

Program:

9:00am – 9:45am Professor Daniel Lowenstein Living with Epilepsy: Finding the balance between reality and hope
9:45am – 9:50am Danny Williams – A Dad’s perspective
9:50am – 10:35am Professor Ingrid Scheffer Natural history studies of the developmental and epileptic encephalopathies: the what, why and how
10-:35 – 10:40am Kellie Clohessy – The impact on siblings
10:40am – 11:00am Morning tea
11:00am – 11:45am Assoc Professor Annapurna Poduri Individualized treatments for epilepsy – following the genes
11:45am – 11:50am Dr Nelson Olivier, Praxis Precision Medicines – Our vision for rare genetic epilepsies
11:50am – 12:35pm Professor Steven Petrou The importance of disease mechanism in therapy: lessons from SCN1A
12:35pm – 1:25pm

1:25pm – 1:30pm

Lunch

Sara Crawford – Life as a parent of a child with refractory epilepsy, survival tips for the chaotic life

1:30pm – 2:15pm Dr Emma Palmer Making sense of rare genetic diagnoses: working with families to inform and support
2:15pm – 2:20pm Dannielle Goodwin – A Dravet patient’s perspective
2:20pm – 3:05pm Dr Katherine Howell Genetic diagnosis: will it change my child’s current treatment?
3:05pm – 3:30pm Afternoon tea
3:30pm – 3:35pm Heather Renton – Syndromes Without A Name (SWAN)
3:35pm – 4:30pm Panel Discussion Sara James leads the panel of experts

 

Any questions? Email us at: [email protected] or contact us via Facebook.

GETA:  GET A Team, GET A Target, GET A Cure

The Genetic Epilepsy Family Conference 2019 was Supported by:

GETA 2019 sponsors

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