Blog - Genetic Epilepsy Team Australia

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11 hours ago

RESEARCH OPPORTUNITY:
GETA families are invited to participate in the research.
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Lifestyle program for the families of children with genetic epilepsy.

Researchers at The University of New South Wales are seeking volunteer research participants to join an online 4 week intervention to learn about the effects of increased physical activity on wellbeing, particularly in relation to mental health.

Would the research study be a good fit for me?
The study might be a good fit for you if:
-You are the parent or primary carer of a child with genetic epilepsy
AND

What would happen if I took part in the research study?
If you decide to take part you would:
-Answer some questionnaires before and after the trial.
-These will ask about your mental health, physical activity levels and quality of life
-Agree to the researchers having access to your fitness data
-Join a private Facebook group specifically initiated for this study group
-Commit to participating in the intervention for a 4-week period with a 1 month follow up.
-Listen to/read the content provided by the exercise physiologist
-Participate in a weekly group video call if you choose
--Be encouraged to provide input to the Facebook group

Who do I contact if I want to take part in the study or want more information?
Name: Grace McKeon
Contact: Email: [email protected]

Please note: This is a pilot study and only accept a limited number of participants will be accepted at this time. The study will be closed once the number of participants has been reached. ...

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Genetic Epilepsy Team Australia - GETA

6 days ago

Please donate if you can.

The Pip.ilepsy FoundationA donation as small as $10 can gift a newly diagnosed child one of these little friends to have by their side.

Sharing the message of hope that a cure for epilepsy will one day be found.

To make a TAX -DEDUCTABLE donation DONATE through our homepage.

We couldn’t do this without you!..

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.Do you know of a newly diagnosed epilepsy warrior that may need a little hope from our unicorn? If so tag them in this post as them to like, share and follow our page....don’t forget to email us with their details and we will be sure to get one of these little guys out to them in the mail 💌🦄
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#ibelieveinunicorns #unicornscureepilepsy
#epilepsy #epilepsyawareness #epilepsywarrior #epilepsyfighter #eofy #taxdeduction #thankyou ...

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